The persistence of health inequalities between different population groups has been well documented, including the inequalities faced by people with learning disabilities. Today, people with learning disabilities die, on average, 15-20 years sooner than people in the general population.
The Learning Disabilities Mortality Review (LeDeR) Programme has been established to support local areas, to review the deaths of people with learning disabilities, identify learning from those deaths and take forward the learning into service improvement initiatives. It was implemented at the time of considerable spotlight on the deaths of patients in the NHS and the introduction of the national Learning from Deaths framework in England in 2017. The programme has been developed to review deaths of people with learning disabilities aged 4yrs and over. Please see information below:
View the LeDeR Programme Leaflet for Professionals pdf here
(212 KB) View the information sheet pdf here
(341 KB) View the Notify a death A4 flyer pdf here
(193 KB) View the LeDeR Process Flowchart pdf here (179 KB)
Please see the following link for frequently asked questions.
Black Country and West Birmingham - LeDeR Annual Report:
The LeDeR Programme supports local areas in England to review the deaths of people with learning disabilities aged 4 years and over. Its main aims are:
- To support improvements in the quality of health and social care service delivery for people with learning disabilities.
- To help reduce premature mortality and health inequalities for people with learning disabilities.
A confidential telephone number and website enables families, health and social care providers and other key people to notify the LeDeR team of the death of someone with learning disabilities.
An initial review of the death will then take place. The purpose of this is to provide sufficient information to be able to determine if there are any areas of concern in relation to the care of the person who has died and if indicate, a more in-depth, multiagency review will then be conducted to see if any further learning could be gained that would contribute to improving practice. The reviews also identify areas of good practice which can be shared.
As part of the review, the local reviewer would speak to family members, friends, professionals and anyone else involved in supporting the person who has died to find out more about their life and the circumstances leading to their death.
The Annual Report on Learning Disability Mortality Reviews (LeDeR) for Black Country and West Birmingham 2019/20 can be viewed here